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Fergal Bowers 1 -
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Tue Aug 25 2026 - 19:29 • 2 MIN READ 1 -
Gerard Howlin 1 -
Fri Aug 28 2026 - 06:00 • 3 MIN READ 1 -


Why families had to protest and even litigate to get Skyclarys for Friedreich’s ataxia

Fri Aug 28 2026 - 06:00 • 3 MIN READ — irishtimes.com


Opinion: Early access to all drugs for rare diseases is pie in sky unless we tax to fund it

Gerard Howlin — irishtimes.com


The Irish Times view on drug reimbursement: lessons from the Skyclarys saga

Tue Aug 25 2026 - 19:29 • 2 MIN READ — irishtimes.com


'This cannot happen again'

Róisín Cullen — rte.ie


HSE agrees to fund drug for patients with Friedreich’s ataxia

Shauna Bowers — irishtimes.com


Uncertainty over Skyclarys decision as HSE team to meet

RTÉ News — rte.ie


Friedreich’s ataxia: ‘We haven’t got time. We just simply need a chance’

Katie Mellett — irishtimes.com


Campaigners in final push for Skyclarys approval

Harry Manning — rte.ie


Campaigners make final appeal to HSE over Skyclarys drug

Sandra Hurley — rte.ie


FG TDs ask firm behind Friedreich’s ataxia drug to consider compassionate access scheme

Jack Horgan-Jones — irishtimes.com

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